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Acadian
post Oct 30 2019, 08:40 PM
Post #13521


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From: Las Vegas



On balance sounds like good news, Rider. As you say, simply to have a diagnosis is a good step. Hope this is a turning point for you. smile.gif


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Decrepit
post Oct 30 2019, 09:26 PM
Post #13522


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From: Mid-South USA



Aye, it sounds like a very possible step in the right direction. Had my own pulmonologist visit not long ago. To the plus, my situation has not worsened. On the other hand, it's no better. Like you I'm on antibiotic doses, in my case one 10-day treatment per month 'if all goes well,' with additional 10-day treatments as needed in case of flareups. Had a number of those recently. Leastwise I assume that's what they were. Scary thing about my condition is that flareup symptoms are very like those of heart problems. I've long said the time will come when I experience what I assume is a flareup, medicate it as such, and drop dead from stroke or heart attack. Such is life. Speaking of which, I've a heart echo-cardiogram schedule early December. Am anxious to see how it turns out, more so than in the past, as I've felt rundown lately.

This post has been edited by Decrepit: Oct 30 2019, 10:57 PM


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mALX
post Oct 30 2019, 10:54 PM
Post #13523


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From: Cyrodiil, the Wastelands, and BFE TN



QUOTE(haute ecole rider @ Oct 30 2019, 02:58 PM) *

I'm glad you got to enjoy a wedding and the reception afterward so much, mALX. I usually find such events to be a drag, and typically get drunk as fast as I can so it's not so painful biggrin.gif

I have news of my own. My new pulmonologist ran a full battery of tests to determine the cause of my chronic lung disease, like me he felt it was either hypersensitivity or immune. The biggest thing to come out of that is that I have nearly zero antibodies, and minimal reaction to the pneumonia vaccine they gave me at the same time. Because it was not only IgG that was severely low, but also my IgA, he sent me to an immunologist.

Saw this immunologist for the first time today. First she said my pulmonologist already did such a thorough job of testing for everything she didn't see the need for further tests. Then she diagnosed me with Common Variable Immunodeficiancy. She had me fill out paper work to enroll in a trial for subcutaneous IgG infusion that I can do at home on my own. It may take up to three weeks before I'm approved and get the equipment/drugs I need to do this. She did give me a flu shot, because as she put it, a minimal reaction is better than no reaction at all. In other words, if I don't try, I can't win.

And she thinks the reason I've been so tired and achy these past few weeks is because I'm fighting a flu infection. She thinks I should stay on prophylactic antibiotics for the time being.

Overall, I feel better just having a diagnosis, even a vague one like CVID. It sure explains a lot of what I had been seeing/experiencing since 2012.


Aw, Haute! I'm so sorry you have been going through all this. I really hope this Doctor's diagnosis is the answer you have needed to finally get back to having your life return to normal again. You will stay in my prayers until then, dear friend. Hug_emoticon.gif





QUOTE(Decrepit @ Oct 30 2019, 04:26 PM) *

Aye, it sounds like a very possible step in the right direction. Had my own pulmonologist visit not long ago. To the plus, my situation has not worsened. On the other hand, it's no better. Like you I'm on antibiotic doses, in my case one 10-day treatment per month 'if all goes well,' with additional 10-treatments as needed in case of flareups. Had a number of those recently. Leastwise I assume that's what they were. Scary thing about my condition is that flareup symptoms are very like those of heart problems. I've long said the time will come when I experience what I assume is a flareup, medicate it as such, and drop dead from stroke or heart attack. Such is life. Speaking of which, I've a heart echo-cardiogram schedule early December. Am anxious to see how it turns out, more so than in the past, as I've felt rundown lately.


I worry about you as much as I do Haute. I'm glad the VA is giving you a Cardiologist to keep up with what is going on with you. I was going through the same thing before they put me on medicine to regulate my heartbeat; it has made all the difference for me. Hope they find the issue and fix whatever is causing it.







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