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Acadian
post Oct 30 2019, 08:40 PM
Post #13521


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On balance sounds like good news, Rider. As you say, simply to have a diagnosis is a good step. Hope this is a turning point for you. smile.gif


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Decrepit
post Oct 30 2019, 09:26 PM
Post #13522


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From: Mid-South USA



Aye, it sounds like a very possible step in the right direction. Had my own pulmonologist visit not long ago. To the plus, my situation has not worsened. On the other hand, it's no better. Like you I'm on antibiotic doses, in my case one 10-day treatment per month 'if all goes well,' with additional 10-day treatments as needed in case of flareups. Had a number of those recently. Leastwise I assume that's what they were. Scary thing about my condition is that flareup symptoms are very like those of heart problems. I've long said the time will come when I experience what I assume is a flareup, medicate it as such, and drop dead from stroke or heart attack. Such is life. Speaking of which, I've a heart echo-cardiogram schedule early December. Am anxious to see how it turns out, more so than in the past, as I've felt rundown lately.

This post has been edited by Decrepit: Oct 30 2019, 10:57 PM


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mALX
post Oct 30 2019, 10:54 PM
Post #13523


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From: Cyrodiil, the Wastelands, and BFE TN



QUOTE(haute ecole rider @ Oct 30 2019, 02:58 PM) *

I'm glad you got to enjoy a wedding and the reception afterward so much, mALX. I usually find such events to be a drag, and typically get drunk as fast as I can so it's not so painful biggrin.gif

I have news of my own. My new pulmonologist ran a full battery of tests to determine the cause of my chronic lung disease, like me he felt it was either hypersensitivity or immune. The biggest thing to come out of that is that I have nearly zero antibodies, and minimal reaction to the pneumonia vaccine they gave me at the same time. Because it was not only IgG that was severely low, but also my IgA, he sent me to an immunologist.

Saw this immunologist for the first time today. First she said my pulmonologist already did such a thorough job of testing for everything she didn't see the need for further tests. Then she diagnosed me with Common Variable Immunodeficiancy. She had me fill out paper work to enroll in a trial for subcutaneous IgG infusion that I can do at home on my own. It may take up to three weeks before I'm approved and get the equipment/drugs I need to do this. She did give me a flu shot, because as she put it, a minimal reaction is better than no reaction at all. In other words, if I don't try, I can't win.

And she thinks the reason I've been so tired and achy these past few weeks is because I'm fighting a flu infection. She thinks I should stay on prophylactic antibiotics for the time being.

Overall, I feel better just having a diagnosis, even a vague one like CVID. It sure explains a lot of what I had been seeing/experiencing since 2012.


Aw, Haute! I'm so sorry you have been going through all this. I really hope this Doctor's diagnosis is the answer you have needed to finally get back to having your life return to normal again. You will stay in my prayers until then, dear friend. Hug_emoticon.gif





QUOTE(Decrepit @ Oct 30 2019, 04:26 PM) *

Aye, it sounds like a very possible step in the right direction. Had my own pulmonologist visit not long ago. To the plus, my situation has not worsened. On the other hand, it's no better. Like you I'm on antibiotic doses, in my case one 10-day treatment per month 'if all goes well,' with additional 10-treatments as needed in case of flareups. Had a number of those recently. Leastwise I assume that's what they were. Scary thing about my condition is that flareup symptoms are very like those of heart problems. I've long said the time will come when I experience what I assume is a flareup, medicate it as such, and drop dead from stroke or heart attack. Such is life. Speaking of which, I've a heart echo-cardiogram schedule early December. Am anxious to see how it turns out, more so than in the past, as I've felt rundown lately.


I worry about you as much as I do Haute. I'm glad the VA is giving you a Cardiologist to keep up with what is going on with you. I was going through the same thing before they put me on medicine to regulate my heartbeat; it has made all the difference for me. Hope they find the issue and fix whatever is causing it.







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mALX
post Nov 28 2019, 05:02 AM
Post #13524


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Happy Thanksgiving to all at our Chorrol family!!





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mirocu
post Nov 28 2019, 05:46 PM
Post #13525


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-Happy American Thanksgiving!

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Acadian
post Nov 28 2019, 08:00 PM
Post #13526


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Woot! Everyone to mALX's house for dinner! tongue.gif


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mirocu
post Nov 28 2019, 08:10 PM
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QUOTE(Acadian @ Nov 28 2019, 08:00 PM) *

Woot! Everyone to mALX's house for dinner! tongue.gif

From what I've read from her, she makes the smashiest of dinner parties! biggrin.gif


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Sakiri
post Nov 28 2019, 09:31 PM
Post #13528


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Haha!

Don't miss apartment life. My neighbors are quiet. Apartments I always had loud, obnoxious neighbors.


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mALX
post Nov 29 2019, 02:19 AM
Post #13529


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From: Cyrodiil, the Wastelands, and BFE TN



QUOTE(Sakiri @ Nov 28 2019, 03:31 PM) *

Haha!

Don't miss apartment life. My neighbors are quiet. Apartments I always had loud, obnoxious neighbors.



huh.gif ????


Did a conversation take place that I missed? laugh.gif


Okay everyone who DIDN'T come to eat Thanksgiving dinner with me; we had:


Turkey
Ham
Stuffing
Mashed Potatoes
Corn Bread Casserole (Mmmmm!)
Candied Yams/sweet potatoes
Pumpkin Pies
Red Velvet Cake
Corn Bread
Rolls
Banana Pudding
Banana Bread
Banana Nut Muffins




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Grits
post Nov 29 2019, 02:42 PM
Post #13530


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From: The Gold Coast



I hope Happy Thanksgivings were had yesterday!

I am about to start heating up leftovers. We moved back into our house in the nick of time for cooking and dined in the shadow of unpacked boxes, but the family was here along with some dear friends, so it was good. The fridge broke Wednesday, the oven thermometer doesn't work, and the kitchen floor is cardboard sheets that we taped together. But at least we have a wall now (so no toilet in the kitchen). I think we will always remember this year's celebration!


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mirocu
post Nov 29 2019, 06:38 PM
Post #13531


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Wow, mALX. You sure can make dinner, like I said. I can't imagine anyone going from that table with their pants still buttoned laugh.gif


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mALX
post Nov 29 2019, 08:48 PM
Post #13532


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From: Cyrodiil, the Wastelands, and BFE TN



QUOTE(Grits @ Nov 29 2019, 08:42 AM) *

I hope Happy Thanksgivings were had yesterday!

I am about to start heating up leftovers. We moved back into our house in the nick of time for cooking and dined in the shadow of unpacked boxes, but the family was here along with some dear friends, so it was good. The fridge broke Wednesday, the oven thermometer doesn't work, and the kitchen floor is cardboard sheets that we taped together. But at least we have a wall now (so no toilet in the kitchen). I think we will always remember this year's celebration!


So glad you were still able to celebrate your Thanksgiving this year!!!





QUOTE(mirocu @ Nov 29 2019, 12:38 PM) *

Wow, mALX. You sure can make dinner, like I said. I can't imagine anyone going from that table with their pants still buttoned laugh.gif


You are right; and although Thanksgiving is my favorite meal of the year to cook = I didn't cook this one. This came from my new Daughter-in-Law's extended family Thanksgiving dinner. We didn't have one at our house this year due to my oven still being out of commission (unfortunately).





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Sakiri
post Nov 29 2019, 10:09 PM
Post #13533


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Joined: 17-May 18
From: Scandinavia



QUOTE(mALX @ Nov 29 2019, 02:19 AM) *

QUOTE(Sakiri @ Nov 28 2019, 03:31 PM) *

Haha!

Don't miss apartment life. My neighbors are quiet. Apartments I always had loud, obnoxious neighbors.



huh.gif ????


Did a conversation take place that I missed? laugh.gif


Okay everyone who DIDN'T come to eat Thanksgiving dinner with me; we had:


Turkey
Ham
Stuffing
Mashed Potatoes
Corn Bread Casserole (Mmmmm!)
Candied Yams/sweet potatoes
Pumpkin Pies
Red Velvet Cake
Corn Bread
Rolls
Banana Pudding
Banana Bread
Banana Nut Muffins


Was a page or so back, talking about the pains of home ownership.

I didn't quote.

That list looks like food coma. Love it.


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We will be your light
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And I am Winterborn
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mALX
post Nov 29 2019, 10:55 PM
Post #13534


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Joined: 14-March 10
From: Cyrodiil, the Wastelands, and BFE TN



QUOTE(Sakiri @ Nov 29 2019, 04:09 PM) *

QUOTE(mALX @ Nov 29 2019, 02:19 AM) *

QUOTE(Sakiri @ Nov 28 2019, 03:31 PM) *

Haha!

Don't miss apartment life. My neighbors are quiet. Apartments I always had loud, obnoxious neighbors.



huh.gif ????


Did a conversation take place that I missed? laugh.gif


Okay everyone who DIDN'T come to eat Thanksgiving dinner with me; we had:


Turkey
Ham
Stuffing
Mashed Potatoes
Corn Bread Casserole (Mmmmm!)
Candied Yams/sweet potatoes
Pumpkin Pies
Red Velvet Cake
Corn Bread
Rolls
Banana Pudding
Banana Bread
Banana Nut Muffins


Was a page or so back, talking about the pains of home ownership.

I didn't quote.

That list looks like food coma. Love it.


Ah, I see!






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mALX
post Dec 25 2019, 09:15 PM
Post #13535


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From: Cyrodiil, the Wastelands, and BFE TN




Wishing a very Merry Christmas/Happy Holidays to everyone in our Chorrol "Family!"


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mALX
post Jan 1 2020, 10:58 AM
Post #13536


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Acadian
post Jan 1 2020, 01:03 PM
Post #13537


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Happy New Year! IPB Image


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TheCheshireKhajiit
post Jan 1 2020, 04:24 PM
Post #13538


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From: Sheogorath's shrine talking to myselves!



Tonight we are having porkchops with cabbage and Hoppin’ Johns! Just got done sautéing peppers, onions, garlic, and sliced hog jowl for the black eyed peas and it’s all in the slow cooker!


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mALX
post Jan 12 2020, 05:32 PM
Post #13539


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QUOTE(TheCheshireKhajiit @ Jan 1 2020, 10:24 AM) *

Tonight we are having porkchops with cabbage and Hoppin’ Johns! Just got done sautéing peppers, onions, garlic, and sliced hog jowl for the black eyed peas and it’s all in the slow cooker!


MMMMM!!!




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TheCheshireKhajiit
post Jan 12 2020, 06:32 PM
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QUOTE(mALX @ Jan 12 2020, 10:32 AM) *

QUOTE(TheCheshireKhajiit @ Jan 1 2020, 10:24 AM) *

Tonight we are having porkchops with cabbage and Hoppin’ Johns! Just got done sautéing peppers, onions, garlic, and sliced hog jowl for the black eyed peas and it’s all in the slow cooker!


MMMMM!!!

It was so good!


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